Outside looking in

It robs her
of the woman that she was
and we can only try to
help this new world in which she lives

It clenches her
with a power unforeseen
dragging it with her, along its path
where nothing seems the same

It challenges her
to find a place where she’s content and
those who love her, can comprehend

It leaves her
with unanswered questions
those she’s asked, yet knows not if she has

It punishes her
for growing old, to deal with feeble body
now of mind

It confuses her
a need to fight or not
or is she simply unaware

It damages her
the mother that I knew, where her
imagination plays recycled tricks

As she stares into the distance
forgetting questions that she’s asked
Discontent at routine change
Scared of what once was familiar

Woman once strong
guiding, caring, nurturing, loving
She is still there …somewhere
not knowing that she hides
from the world she knew

img012

Mum

Mum

copyright JMTacken 14.6.14

 

Sharing with

http://solothefirst.wordpress.com/2014/06/12/writing-prompt-alzheimers-disease/

My Mother’s Day – Chat time

Today – Mother’s Day.

Firstly I am thankful as I said in my last post that my mum is still with me. I have read many posts today about some who had a tough upbringing as a child, some who have lost their mums and those who have sadly lost a child. All of them equally as important as another. I thank you for your comments on my Mother’s Day poem and for the bravery you showed in what you wrote and your generous and kind comments to me.

We went to the venue – a Pub towards the city. Firstly mum and Pop (well mum) wondered why we had to travel so far. This is a lady who is confined to her home now and has a grizzle about not being able to get out. We are talking a 45 minute car trip (not have your passport ready).

She was in a mood, wishing to not be happy, to the point of not liking where we were, or what she ate. To watch your mum as an adult, pout, pull faces like a child is very disconcerting and disheartening. Daughter #1 (the eldest) who arranged the venue went to talk to her throughout the afternoon and got very little feedback or response. She was upset by this, she went and cried in the toilet, swearing she won’t try and organise something again. I don’t blame her. There were other reasons for this decision, but I won’t go into those.

Mum’s moods are getting worse, plain to see and it takes strength from all the family not to get angry with her.

Through the afternoon, eldest daughter said “Perhaps she is thinking about Paul”? Paul is my youngest brother who passed 10 years ago, tragically. Perhaps it was this, that made her mood aggressive, compiled with own everyday thoughts and confusion.

I did not ask her, it wasn’t the time not the place to do so.

She was thrilled by the flowers I brought to her in the morning and the card, but then the world changed when Mr.S and I picked them up. It’s difficult, it’s baffling and it’s sadly to say frustrating.

I am not perfect, I know this. I whinge and whine when perhaps I should hold back, especially on posts. So yes I get angry, I’m human and I feel terrible for doing so, but I can’t help it.

If I could return to the laughter and the reminiscing of events that happened within the family I would. If I could bring back the mum who didn’t care where she was or what her meal was like I would. Sadly I can’t this, this is who she is now. I spoke to a friend who visited them with their mum(after we dropped them back home) a friend of my penguins for many years, who afterwards sent me a text saying ..mum doesn’t even remember what she had for lunch.

She will always be my mother but
no longer the one I had
No longer the mother that I knew
back when I was young
Her life has changed
I compensate, to try and live
in her world now, where there’s
love but sadly also hate
of her life…her situation

I hope all of you Mum’s had a wonderful day. Onward and upward as they say, tomorrow’s a brand new day.
x

Update on the Penguins (Not the winged kind)

This afternoon I took mum for the results on the MRI she had on Monday.

Not dementia as we all thought, but rather that she has had two rather large strokes and has had several smaller ones – this is what is affecting her memory.

No one – not her or the family knew about when these may have happened, but as the Specialist said they are at times silent, not affecting any speech, body movement or restrictions.

Tomorrow morning I get two new lots of medication for her in order to keep her at this level (if they work) otherwise she will eventually develop Alzheimer’s.

When I got her back home and explained to Pop what had happened she started crying, so darling Pop shuffled up to her, put his arms around her and said “Come on Kid, we’ll be fine”, kissing her on the forehead – my heart went out to her, she looked like a frightened little girl. My heart went out to Pop too, growing old sucks, you suffer, one way or the other, yes it’s part of life and we will all have to face  the age process and possibly medical issues – but it just sucks.

Now we go back in two months to see how she is and what needs to be done, if anything..

This is an update only for those that are kindly following their journey, no need to post a comment.

x

Update on my Penguins (quite a lengthy piece – Part 1)

The last few poems I have written about have concerned my family.

My family, especially my parents have become part of your live’s in a distant way. The ups, the downs and in-betweens of their life, have to you, my readers in a small way become yours.

As you know Pop (my dad) is quite feeble. Somedays, thankfully, he can pull himself up off his chair, or walk to the front door unaided, but usually with the help of a walker. He has the new seat on the toilet that is like a chair, so that he does not call out to mum for aid to get up. He has the hospital pull-up post on his bed, so that he may get in and out of bed more easily and he has the rails and seat in the shower.

A recliner chair that also tilts forward helps him plant his feet on the ground and be in an almost standing position for him to get up.  A chair with arms, so that he can pull himself up after eating.

I didn’t think these days would come, not when I was young, not when I saw him play shuttle-cock with us, not when I saw him public speaking with a strong, confidant voice, not when I saw him dance with mum across the floor.

How our lives change ~ now I watch him struggle, his voice on days grow weak. Thankfully there are good days, where he jokes and laughs and says that he’s doing okay.

Mum as you know is slipping slowly. We took her to the Specialist last week (a Geriatrician) to be assessed for Dementia. My brother P and I walked in with her and sat down. It was a battle to get her there, the phone call I received the night before and the morning of was “I’m not going to see him – I don’t need to – you aren’t my doctor, they just want to get more money out of us”. One of those phone calls she got angry and hung up on me.

“Now why are you here” he asked warmly.
“Because they said I have to come”.
I told him – “This won’t be easy”. Mum was almost child-like in her responses.
When he asked “What is your birthday and how was your child-hood”.
She replied with the correct date, but then “What on earth do you want to know that for!”
Her stubborn pants were on.
My brother and I were asked to leave the room and fill out 2 pages of certain behavioural aspects now, compared to 10 years ago.
After we had finished we went back in and we had to say in front of mum, why we believe she should be there…. that was tough and the Doctor said to mum “Now don’t get angry with them, but I have to ask a few questions”.
We explained as tactfully as we could, our reasons.
He then ordered an MRI and to make a further appointment, once this had been done.
All the way home mum in the back seat kept saying “I don’t need this MRI – nothing is wrong with me”.
Yesterday I went round and asked her if I could tidy one of her grocery cupboards (pantry) she said “Yes, but I must see what you want to throw away”.
I agreed.
Pops said he has been trying to get her to tidy/sort it out for years.
“Mum the use by date on this is 2004 – can I throw?”
“What is it?”
“Mum it’s 2004”.
Much thought and pulling of faces.
“Ok I guess so…”
This went on for over an hour. Me asking, her refuting the dates and that they were still fit for human consumption.

Empty jars, herb/spice bottles, plastic containers…. “No I want to keep them”
It went on and on, she was getting angrier, all of these meant something to her..something she could hold on to..like her past.

We got through it without her grabbing Pops walking stick and threatening me with it, as she did the other week. This gentle, kind and warm woman – slowly becoming a different person… a different mum.

Times are a changing – the road won’t be concreted nor smooth, but a rocky path, we now wait till the MRI appointment.

If you got through all of this – thank you for reading.

 

The Greatest Loss of All (Prose)

2013-04-19 10.30.36

I’ve lost loves ~ found others

feelings crushed ~ as wine from grapes

but I grew again ~ stronger in the light

of another day

I’ve lost pets ~  finger-tips trace

old photographs and ashes held to chest

I’ve lost grand-parents ~  relatives

across the seas ~  some I never met

I’ve lost jewellery ~ belongings

insignificant

the hardest loss ~  the insurmountable

that sheds the tears the most

the you that I am losing

now ~ ‘Irene’

***************

©jmtacken24/11/2013

The prompt for Mindlovemisery is for my mum.

http://mindlovemisery.wordpress.com/2013/11/24/prompt-31-take-me-back

This is an explanation of the prompt written by MLM :-

Loss of love, friendship, employment, youth we’ve all experienced a sense of longing (even if brief) for the restoration of a relationship, state of being, or situation. Is there anything or anyone you’ve lost? Has hindsight clarified your illusions or created a crippling nostalgia? All forms of media are acceptable. Your entry can be fiction, non fiction, or a combination of the two. My entry is totally fictional and encase there is any confusion the “I” in my poem is male. The loss can be based on choice(s) you’ve made or events that were not within your control but you wish, nevertheless, to alter. You do not have to use the phrase “Take me back” but you are welcome to do so. This prompt comes from an idea given by a very talented writer whom you can visit here Summerstommy

 

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Please read Patricks Perspectives which will give you an insight into this disease, sadly Patrick’s dad passed very recently from this and he has now began another journey of dealing with his life and his road ahead.

Helping out of Love (Prose)

Mum

Mum

looking upon another’s life
who gives us~ their young
their offspring, the knowledge
to determine what is wrong
and what is right ~ the ethical
are we the deciders of their destiny
who see a life that could be ~ when
the person themselves does not seek
the truth or understand our love
the signs of something horrible to come

the disease that strikes upon
the aged, the memory no longer there
the feeling that they are caged
I want to help, we all do, but your
phone call tonight, your voice so
scared and angry, the thought of
locking you away
combined with other arguments
I felt your fear, it grasped my heart
~ and I…I don’t know what to say

and as you hung up on me
I can’t call you back to say
I am dealing with so much right now
I know you are confused and why
the family do what they need to do
but believe me with all my heart
it’s help we seek, to get you through
if only I could convince you…
if only I could say

I do this out of love for you
today and everyday

©jmtacken 21/11/2013

Update on Pop and Mum

Pop and I made the decision to put his beloved car (a Toyota Camry 2005) up for sale. I placed the photo and description on the web car site Monday night. Yesterday (Friday) it was sold, to a lovely lady who had unfortunately written off her previous Camry the morning prior in an accident.

She came along with her father to test drive the car, pop was standing in the driveway balancing with his walking stick. Though his walking has marginally improved, he is still very shaky and cannot turn around as he once did. Now he ‘side shuffles’ to ‘do a u-turn. The lady and her father got in the car and I asked pop to move out the way so they could back it out of the driveway. Pop remained standing where he was, it seems as if he has lost his ‘awareness’.

Normally he would have automatically moved, knowing that the car wheels would possibly run over his feet but he didn’t move until I held his arm and guided him out of the way. It is a very sad thing for him to give up driving and sell his car, but he knows it’s the responsible thing to do. Mum however won’t let it rest, she is adamant she will not get a motorised scooter and says that ‘This is my lot now to be stuck inside the house every day’.

I am trying to persuade her to get one too, so that they can at least get out of the house when the weather is nice and have some independence. It’s a battle with mum, pop at this juncture is fine with getting one. The battle no doubt will continue.

We are going out for lunch tomorrow with them and some family members and their friends, so today was also time to give pop another pedicure and a shave. Bless him, because he has a bit of a double chin, when he does shave he doesn’t get into the ‘folds and crevices’. So out with the new fancy wet or dry electric shaver was I. I then made him walk with his walker twice to the front door and back.  Yes, I’m a hard task manager, but if I don’t remind him to get up and exercise he lets it slide. He has attended one physio session and has to for a further 10 weeks (once a week) to try and get his core strengthened (good luck with that physiotherapists). He also has to move every hour on the hour and drink more water!

Mum’s memory is progressively growing worse and she loses her temper with me very easily and often! She will salute me now and say “Yes Sir” or “You love to boss me around now” and there is anger in her voice. It’s so difficult not to get upset with her when she puts her stubborn shoes on, but I have to try and remember she doesn’t know that she has asked me the same question 3 times in 30 minutes, or that we have had a conversation about a particular subject several times over.

It is hard for me not to sound patronising, I realise I don’t talk to pop in the same way as I talk to mum and it’s simply the frustration on my part trying to get her to see reason, when clearly it is difficult for her to do so. Whereas I They are no longer the sprightly and comprehending parents that I once knew, not all that long ago, now I see that the ageing process has taken over and is in control.

So that was my Saturday afternoon. I shall continue to post  about my two ‘darlings’ to those who are willing to read.