Six days in Hospital & now back at Aged Care (ASL). Life became a complete blur, paperwork needing attending to forgotten. Appointments, schedules…all of it no longer important. Days turned to nights in the hospital. Similar to now. Pop has each day thought it was his last, so we are trying to be positive around him, as he’s very scared of closing his beautiful blue eyes and not opening them again. Our bond so close and even closer now.
Mum on the other hand, though not really knowing what is happening, has, through her vascular dementia changed dramatically. I am her competition, I am a dictator, I’m interfering, as I spend 10-14 hours with pop (and her) and she feels threatened.
He has blood in his urine, a blocked kidney, double vision. Some days better than others, some he smiles, chuckles, calls B and K ‘cheeky little blighters’. Other days or for the most part, his MSA makes him sleep, unable to open his eyes fully when awake, his arms shake, his voice barely audible.
He asked for all the family to come in, so he can then go in peace. 14 of us plus his 2 great grandchildren are taking food a ‘pre-Xmas lunch’ into the home tomorrow for lunch. He asked if I’d get everyone to bring Panadol in, so that he could take it after they leave. I said no & unless you take 100 of them, it won’t do what you want.
Mum and I simply don’t get along anymore, today we had 42deg C, she screamed every time I put their air con as, as her body thermometer isn’t working and she’s freezing as well as the ‘imaginary draft’. It’s draining, it’s frustrating as pop gets upset hearing her repeat the same thing over and over and over and her fighting with me. This is dementia, this horrid disease that has taken her from her family.
She hates me coming in every day, but I will continue to do so, it is my wish and also pops. I hold his hand during the day, when needing to sleep myself, he says please don’t go, so I stay till I know he’s asleep, returning the next day. Mum spitting venom at me for the majority of the day.
I had a service last Friday, I have one Christmas Eve, I told pop he can’t ‘go’ anywhere, as I wouldn’t be able to do it.
Signing the DNR as pops wish, the most painful thing I had to do.
We have him still, life does end, but it sucks and I hate it, the whole situation, especially with mum making it worse.
He knows I love him to the moon and back and when the universe wants him, I know above all else that I will have no regrets.
Thank you for your kind wishes and thinking of me and my family who you have never met, it means so very much.
A very tired me and my darling pop.